The Walker Family

One of the greatest forces on earth is the power of human connection. We were made

to live life alongside one another—in community and relationship. Keeli Walker knows

more than most not only how important finding that connection is, but also how

challenging it can be for a family whose journey has been impacted by medical

complexity.

“Not many people understand how different your life becomes after your child becomes

diagnosed with a chronic illness,” Keeli shared. “We had to change our diets, routines,

schedules, everything.”

Keeli is mom to five-year-old Rory. When she was three years old, Rory was diagnosed

with Idiopathic Nephrotic Syndrome associated with diffuse mesangial hypercellularity.

This condition causes her kidneys to leak protein into her urine, along with high

cholesterol, high blood pressure, and other challenging symptoms. Rory has also been

diagnosed with Mosaic Turner syndrome, a condition that affects growth and comes

with a range of potential health concerns that will require ongoing monitoring throughout

her life.

In the midst of navigating these medical challenges, the Walker family found a source of

connection and support through Wichita’s Littlest Heroes in January 2024. More than

just a charitable organization, Wichita’s Littlest Heroes strives to be a community that

feels like family—and for Keeli, that mission became reality.

“They’ve (Wichita’s Littlest Heroes) provided financial support to us in times of need and

events for both of my daughters to socialize and have fun,” Keeli said. She went on to

share how WLH events create space not only for Rory to be included and connect with

children whose journeys resemble hers, but also for their seven-year-old daughter,

Adeline.

“They’ve allowed our entire family to participate in events and feel included in Rory’s

journey,” Keeli said. “But most importantly, we’ve connected with families, who have

similar lifestyles to ours. It’s been incredibly reassuring to have a community of families

who have also had to rearrange their lives. Wichita’s Littlest Heroes has given me hope

and a sense of community and support at the most stressful time of my life. I know that I

can count on their team as well as the other parents to walk alongside us on this

journey.”

In the midst of uncertainty, families like the Walkers remind us of the strength that

comes from shared experience—and the healing that grows in the space of

understanding and support.